‘Do you see what I see?’…

…Well, if you’re blessed with reasonably healthy peepers in good working order, dear Reader, the answer is – fortunately for you – a resounding ‘No!’.  During my ongoing RD journey, I have on many occasions attempted to describe to people the often weird and frequently frustrating way it’s affected my view of the world but it’s incredibly difficult to explain and, in all fairness, probably equally difficult for the good-sighted person to comprehend.  However, with the help of an extremely patient photographer who was happy to listen to my explanations and engage in extensive jiggery-pokery with photo-editing software, I now have some visual examples which go some way to describing what it’s like looking at the world through my eyes.

Picture one: retinal detachment

detachment

This shows what my vision was like when I had my first detachment, back in April 2014.  It started with a couple of tiny black floaters which came and went, and a small cloud of very pale floaters up in the top right corner of my vision which I could only see if I looked up to the bright sky.  Next, I experienced a kind of visual ‘pulling’ at the left side of my eye.  Within hours, a solid black curtain began to spread slowly across my vision until I could only see a small amount at the far right-hand side.  I now know that the much-dreaded ‘curtain’ must be treated as a medical emergency, as surgery is required as soon as possible in order to have more chance of saving vision.

Picture two: looking through silicone oil

oil

This gives some idea of what it’s like looking through the silicone oil in my eye at the current time.  Everything is very blurred, to the extent that I can’t make out any detail in people’s faces or read text unless it’s GIANT TEXT (obviously a lot bigger than that – I’m talking the size you get on the side of a bus, for example).  Colours appear far less saturated, and straight lines are no longer straight but have little wiggles in them (this was something which unfortunately couldn’t be demonstrated in the picture).

Picture three: looking up, through silicone oil

oil-looking-up

This demonstrates what it’s like to look up through the silicone oil, which I try not to do because lots of little black floaters start to come down and freak me out.  I see the line of the oil, which hovers and moves around depending on the angle I’m looking at and the position my head is in.  If I lie on my side and look up, I can see it at the top-right of my eye.  When we look at something, the image projected onto the retina is inverted and reversed; this is sent to the brain via the optic nerve and the brain then ‘flips’ everything around.  In effect, it’s like looking in a mirror whilst standing on your head.  So, because of this, and because the oil floats in the eye (a bit like a bubble in a spirit level), I think that what I’m seeing here is actually the bottom of the oil bubble.  I’m not quite sure why I see the black floaters or exactly what they are – bits of debris or tiny bits of oil which have escaped from the main bubble, perhaps?  If anyone knows, please enlighten me!

Picture four: looking through silicone oil when outside on a cold day

cold

I have no idea why this happens, but when it’s very cold and I’m outside, the vision in my RD eye gradually becomes cloudy until it’s as if I’m looking through thick fog.  Once I go back inside, the foggy vision gradually clears as I start to warm up.  I once asked one of my surgeons about why this happens, and he seemed rather intrigued but unfortunately wasn’t able to explain it.  My sister observed that cooking oil becomes cloudy due to changes in temperature, to which he looked highly amused and pointed out that he’d injected silicone oil into my eye, not cooking oil! 😮

Picture five: night vision through silicone oil

night

People often think that because I find bright light extremely difficult to deal with I must be absolutely fine in the dark, but unfortunately this isn’t the case.  Everything is still very blurry, and because I can’t see any detail using my right eye, the darkness just exacerbates this so that I can’t see very much at all.  Difficulties with depth perception are also worse in the dark.

Of course, some of the weird things I see just can’t be described adequately using still images.  One example of this is what my eye buddies have described as ‘the lava lamp effect’.  This is when a small bright white orb of light suddenly appears and scoots around part of the perimiter of my eye before disappearing again.  Sometimes, it breaks up into several smaller orbs of light which fling themselves in different directions before disappearing.  This can happen at any time and occurs multiple times a day, as well as during the night.  It can be extremely distracting, although I have kind of got used to it now.  I’ve never been given a definitive explanation as to what causes it but have been told that it’s probably traction on the retina.  Another odd effect is a shaft of light which seems to beam down into my eye when I catch the light from a certain angle.  It mainly seems to be overhead lights which are the culprit.  As well as all this, there’s the constant flickering which occurs whenever I move from a bright room into a darker one and is the source of much paranoia at times.  Finally, the floaters in my left eye have remained rather appropriately elusive, despite several attempts to capture an impression of them in a photo, so this might be a project for another day…

Note: Huge thanks to the patient photographer, for producing these images for me, in a radical departure from the far more aesthetically pleasing subject matter of landscapes and flower photography.  🙂

140 thoughts on “‘Do you see what I see?’…

  1. brian

    Back in September 2020 Tom Durkin asked a question about something he was experiencing after having oil in his eye after surgery. He didn’t say if he had a detached retina or macular hole. He indicated that in the operated eye with silicone oil his vision would focus in about one or two seconds if he adjusted his head in a face down position like looking down at the floor or looking face down at a computer or magazine in your lap for example. When he brought his head up in a normal position the eye with the oil would return to the usual very blurry view. He was due to have the oil removed in two weeks after 3.5 months. That was almost 4 years ago and he hasn’t posted. I am having the exact same experience after a second surgery to repaitr a macular hole. The first time the hole didn’t close and gas was used. The second time (7 weeks ago) oil was used. When I tilt my head to a face down position even the starnds of carpet look relatively normal but when I move my head into another position the exterme blurriness from the oil returns. I am very interested to know if anyone has an explanation

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    1. ejb117 Post author

      Hi Brian – I’ve just found and re-read the thread with Tom’s original query about this. From his first comment, I assume he had a retinal detachment rather than a macular hole. He didn’t say whether his macula was on or off in the detachment.

      Now, I’m not a medical expert at all but just a patient like yourself. However, I have a possible theory. My understanding of macular hole surgery is that either a gas bubble or silicone oil is placed in the eye and this acts as an internal splint, applying pressure to the hole with the aim of causing it to close up again. The oil floats in the eye, so when you lie face-down to posture, or bend your head over to look at the floor, the oil is pushing against the back of your eye, against the macula. I wonder if it’s this action which means that the hole is sort of being pushed closed, meaning that you can focus more clearly? Then when you move your head up again, it releases the firm pressure on the hole and things become more blurry again? Please note that this is only a possible theory! The best person to ask is your consultant, as they’re the expert and will have knowledge of your particular case. If you find out the answer, I’d be interested to hear it though! Wishing you all the best.

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      1. brianeshear

        Thank you for the quick response. I have mentioned your theory to my retina specialist a few weeks ago, who is reluctant to adopt the theory. It is a theory that concerns me because it leads me to believe (and I hope I’m wrong) that more pressure or time is required with the oil. My doctor believes that the images (seated) show that the hole is closed and closed means closed. Since I’m not a doctor, it’s difficult to grasp the concept that closed means closed. Let’s face it when you first see the symptoms of a pending macular hole, the hole is closed but there are the beginnings of the hole. It’s been just over 6 weeks since the second surgery and I am told that when I see the doctor next week he will recommend that I get the oil out in early or mid-May. He hasn’t been able to tell me exactly why I am experiencing the ability to focus when I look down and I’m praying that this will have a happy ending.

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      2. ejb117 Post author

        Well, your doctor is the expert so if he’s reluctant to adopt that possible theory and is confident that the hole is closed, that sounds hopeful! 🙂 Also, early to mid May means that you still have a few weeks to go. Fingers crossed for you!
        The only other potential explanation I can think of is that the oil is acting like a magnifying glass when you look down- like the gas bubble does, once it gets much smaller.

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  2. brianeshear

    I have found this article and comments to be a source of some relief while I am recuperating with silicone oil in my eye. I was wondering whether anyone including our author had any recommendations for calming oneself when the blur in the affected eye seems relentless and one needs to continue to work, function etc.

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    1. ejb117 Post author

      I know a lot of people patch the RD eye, but I was advised not to do this as it only delays the brain adapting to the change in vision..I think taking regular breaks helps, especially if you work on a computer. Eye drops for dry eyes might also help, if needed. It can be tough getting used to visual changes!

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